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The recommendations from the workshop were just published in the medical literature: Recommendations for real-world evidence of efficacy and safety of GLP-1 agonists in Prader-Willi syndrome: Report of a workshop held by the Foundation for Prader-Willi Research and International Prader Willi Syndrome Organisation The experts agreed on the urgent need to collect detailed real-world data from individuals with PWS who are prescribed GLP-1s

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Nonetheless, Mendelian disorders of low HDL-C levels are rare, and thus the sample sizes in these studies are limited and it is difficult to draw accurate conclusions